What the heck does the island of Borneo have to do with Asperger’s Syndrome, you ask??

This title came to me as I remembered Scout, just six years old at the time, showing me where Borneo was on the globe.  It’s so like an Aspie to know where some random place is found at any given time.

Sometimes I feel like my son is very much like Borneo…an exotic and beautiful place that most of us don’t know much about—an island, all by itself in a very big ocean.

How does a Mom cope with her child having a diagnosis that makes him different from your average child?  She just tries to make it through, one day at a time.  She reads a lot, surfs a whole lotta web, talks with other parents going through a similar situation, watches every movie or TV special about the subject that she can, attends seminars.  She sighs a lot, and cries a lot.  A lot.  But she also laughs a lot, too.  How can she not?  When one is living with Asperger’s Syndrome there are definitely many funny moments.  And many triumphant ones, too.

This mom also writes, which brings me to this blog.

My son was diagnosed with Asperger’s Syndrome at age five, in 2007.  That was not my darkest day, however…that came a day or so after, when I dived into Tony Atwood’s book titled simply ‘The Complete Guide to Asperger’s Syndrome’.  Of course this diagnosis is anything but simple and this ‘guide’ guided me straight down a very black tunnel after learning of the high percentages of people with this diagnosis that have depression and are suicidal. Not exactly the hopes and dreams you have for your child.  Needless to say I closed the book with a snap there and then and haven’t opened it up since.  I guess sharing the day to day life with my son will be my own guide.

“I didn’t know being a child would be so difficult…” – Scout

With this blog I do not look for sympathy for myself or for my son.  He is an amazing kid and I can honestly say that I wouldn’t change a thing about him. (okay.  I guess that depends on the day…)  My goal is to share our experiences and my feelings with anyone that may be going through the same things…or at least things that are similar.  One thing I’ve definitely learned in this process is that no two children on the spectrum are alike.  It’s much easier to go through such a thing when you feel you are not alone.  And let’s face it…sometimes it just feels good to put your thoughts down in black and white when you are struggling, questioning, hurting or rejoicing.

I also share my life with my loving and supportive husband and my ‘typical’ and wonderful teenage daughter. (if you can call a teenager typical…??)  We are your average middle-class family living in the ‘burbs with our dog.  I am a stylist at a fun clothing boutique and like everyone, try to keep balance of it all.

If I am lucky enough to have you along with me on my journey, I would love to hear from you!  Please feel free to comment and share your experiences as well.

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